Attendees:

Debbie Bucci

Thompson Boyd

Sarah Squire

Adrian Gropper

Catherine Schulten

Abbie Barbir

Justin Richer

Danny van Leeuwen

Andrew Hughes

Eve Maler

Jeffrey Shultz

Josh Mandel

William Kinsley

Glen Marshall

Chad Evans

Edmund Jay

Michael Magrath

Dale Moberg

Ishmal Bartley

Jin Wen

Jim Kragh

Salvatore D’Agostino

Discussion:

Semantic Profiles

Are we waiting on use cases before creating a semantic profile?

We will create the profile based on SMART on FHIR. We should inject scopes and other pieces of semantic information as we come across a need for them in the use cases.

Alice Enrolls with PCP ( https://docs.google.com/document/d/1IvbdWerdvMuA1dQ-KQvVKqIBrAas7FoenNVUtgpqYrw/edit )

We discussed the problem statement for the use case “Alice Enrolls with PCP and Sets Up Two-Way Exchange of Personal Data Between EHR and PHR [OAuth Only].” We removed a bullet point regarding use of a trust framework and moved it to the “Setup” section, since it is an assumption, not a problem that is addressed by this use case. We removed a bullet point regarding messaging from the PCP to Alice’s PHR because that functionality is encompassed in the first bullet point.

Adrian’s Use Cases

-

Elderly Mom with Family Caregiver https://docs.google.com/document/d/1V3e_fDH63fNDsV-WOGKcyg0ebuW165DOpjY_RcuMk4U/edit -

  A heartwarming true story of love and devotion. It's all about Alice!
  -

ROI Perspective on health information sharing https://docs.google.com/document/d/1biUqGwvOinf9Sj6eyh3hiiDzoccSEaz3ewOTa7WcwoY/edit# -

  A true story based on paving the current cow path. It's all about the
  institution.
  -

Only 4 Ways to Share Data https://docs.google.com/document/d/17-C7nyI-ZiL4_LsFNrXXrM2MSPx4sCqXSEui2pwhVe8/edit#heading=h.mxi7vvxgyv -

  From Alice's perspective. Not a full use-case but a useful way to
  understand why UMA

HIMSS Identity Task Force

Patients and their proxies are being worked on by the HIMSS identity task force. Is the HEART project interested in learning more about this work? Yes, Catherine will send more information to Adrian.

Elderly mom use case

Should we have more than one “payer”? Typically there are multiple payers, but multiple payers are irrelevant to the problem being solved, so it’s simpler to include only one.

Should we have more than one “custodian”? Usually the caregiver and the proxy are not the same person. However, that is also irrelevant to the problem being solved, so it’s simpler to include only one.

Are these the appropriate technical preconditions given that most healthcare systems are very complex? These are the most appropriate for this use case specifically.

Should required signatures be routed to a proxy, and if so, should this use case address that? We don’t want to introduce any HIPAA violations into the system. Things are usually only routed to the proxy when the patient is incompetent or unable to sign, so it becomes a murky legal area.

Eve added: Completing my self-imposed action item, I "ported" the OAuth entity definitions subsection from the Alice Registers with PCP and Sets Up Two-Way Exchange... https://docs.google.com/document/d/1IvbdWerdvMuA1dQ-KQvVKqIBrAas7FoenNVUtgpqYrw/edit?usp=sharing use case into the Elderly Mom with Family Caregiver https://docs.google.com/document/d/1V3e_fDH63fNDsV-WOGKcyg0ebuW165DOpjY_RcuMk4U/edit?usp=sharing use case, and added an UMA entity definitions subsection. Please see the latter for a couple of inserted comments where I explain a few things I did along the way.

(I sure wish there were a way to transclude https://en.wikipedia.org/wiki/Transclusion external content into each GDoc, so that we could keep the entity definitions up to date while inserting them automatically into each use case. Oh well.)